Category Archives: regan

Negative.

Oh, HAPPY day! Today we are SO very o.k. with still not knowing what’s wrong with Regan. He is still having the BV even on the newest formula. But today that is JUST fine. His sweat test for CF tested negative. And it also only took a a 1/2 hour to get enough sweat. They said it could take up to an hour, so it was nice that it didn’t. The nurses just loved Regan. He didn’t try to rip off the test things, and was happy, chatty, and smiling with anyone who walked by. One nurse in passing said it was so nice to see a baby that wasn’t crying. Regan’s nurse Cyndi was very impressed with him. And very happy to tell us that the test was negative. While we were at the hospital Kaylee was enjoying time at a famous day spa. Have you herd of Aunti Lipgloss’? It’s the newest hot spot for a 2 year old to get a mani/pedi. All while watching a movie lounging on plush pillows, eating fruit snacks and popcorn. She just really did not miss us three at all. But really who could blame her?

HAPPY HAPPY week everyone. We are VERY busy at our house this week. I’ll post about that soonish. It’s all VERY exciting. Well to me anyway.

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updates and such


“Unkie Jots” came to visit on his way down to Phoenix. I was so happy to be able to get these super cute photos of Josh and Regan. I only snapped these three and was happy to stop at perfection before either of these boys were done posing. They were so good to humor me and my photo taking obsession. We hope Josh had a lovely vacation, and we hope to have another visit from him soon.

And now for a Regan update:

We had our appointment with the pediatric Gastroenterologist. He asked LOTS of questions. Which was good. He then decided that we should try a different formula for a couple of weeks. It’s even more broken down and so it smells so much worse. Poor Regan doesn’t really like it. I don’t blame him the smell makes me gag. Pre-digested ick! But hopefully it will do the trick. Dr. “K” also ordered a test for Cystic Fibrosis (CF). He said it was possible that Regan may have CF. We are praying that the test has a negative reading and that Regan does NOT have CF. Jon is going to get the test scheduled ASAP. However if the test comes back negative and the new formula doesn’t help, our poor Regan will most likely have to get the scope and biopsy done. So that is where we are at……

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Regan James 9 months old

His 9 month WCC stats (8/25/2010):

weight: 14 lbs 14 oz .12%
height: 28 in 36%
head: 17.5 23%

This will be LONG and detailed. I want to get it all down for our family book, and for Regan’s baby book.

So it all started 9 months ago…. the Butt Vomit that is. For his first 6 months we (us & Doc.) thought it was just food allergies. At 4 months his weight gain started to slow. At 6 months we (us and Doc.) became a bit concerned about the slow down and the chronic diarrhea (Butt Vomit, or BV as we call it). He also had real bad eczema. He at that point got his first (of many) blood draws for an allergy test. We found out that he is allergic to wheat and dairy. So I stopped eating those and his skin cleared up. The BV was still going strong. We took him in at 7 months old for his first weight check. These are his weights checks:

4 months old: 13 lbs
6 months old: 13 lbs 11 oz (decided to start solids to help him gain)

These next few are all 2 weeks apart:
7 months old: 14 lbs 7 oz
7 months old: 14 lbs 4 oz (getting real worried)
8 months old: 14 lbs 9 oz (worried, but not panicked. yet)
8 months old: 14 lbs 1 oz (in the dark and twisty place of freaked out crying. Decide to try Nutramigen for 2 weeks and see if that helps.)

These ones are one week apart:
9 months old: one week of formula and he is 15 lbs! (relief! but the BV is still going strong so we start giving him the good Bactria to see if that helps)
9 months old: 14 lbs 7 oz (back in the dark and twisty place of freaked out crying)
9 months old: 14 lbs 11 oz
2 days later at his WCC: 14 lbs 14 oz

As you can see his weight gain is not at all consistent. His eating however is. 6 oz every 3 1/2 – 4 hours. He get’s weighed again on Monday. He has seen 3 different pediatricians at his Doctor’s office. 1 has since moved. 1 is stumped. 1 says don’t panic yet, that some kids just yo-yo their weight at this age. They have given him a Failer to thrive (FTT) diagnosis. (LOTS of panicking AND crying…) All 3 say it’s time to see a pediatric GI specialist. So he has an appointment set for 9/7. We are hoping the specialist will have some answers. Even with all the extra Doctor visit’s and the worry, Regan is such a JOY in our home. It’s hard to believe that it’s been 9 months since we were blessed with our little man. Here is some of his fun:

*He is so active army crawling ALL over the house.
*Cut 2 teeth without our noticing.
*Is eating his formula like a champ. (It was a rough start for me (OUCH!) and him)
*Says, “Dadda” and “Mama”
*Laughs and smiles ALL the time.
*LOVES to talk, talk, talk….
*He know his name.
*Is still a snuggle bug and a Mama’s boy. (I love that I’m his favorite.)


Dearest Regan,
please gain LOTS of weight. And STOP having the BV, bleeding bum, and scaring your parents.
xoxoxo- your Mama & Daddy

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