Category Archives: regan

A warning and other stuff

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We will start with the other stuff.

Regan is on a clear liquid diet in preparation for his scope. Clear juices (apple) and lime jello. YUM! And has to drink this nasty stuff. Have you ever had it. I have, it’s awful stuff. Regan agrees! It should be a lovely (enter sarcasm and a cringe) day tomorrow keeping him away from solids and force feeding him the nasty.

But the cleaner his insides are the faster and more efficient the scope will be. So we will power through. And he is the youngest patient so he gets to be first. So that’s something right? He will get to eat at around his normal breakfast time Friday morning. So no starving him for too long.


Sam was working and we were SO hungry after Regan’s appointment so we went and grabbed a bite. (Olive Garden is in visual proximity to Dr. K’s office.) As we were packing up I noticed that she left us a warning. It made my day. Every time I open the fridge and see Kaylee’s leftovers it makes me smile. Sam’s the best! I really LOVE the smiley face next to the “or else.”

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Kayleeism and a Regan update

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Is it sad that our 2 year old knows how to give exams from viewing SO many? Or that we are comfortable enough in our Dr.’s office that we help ourselves to supplies for Kaylee’s entertainment while we wait to be seen?

She was telling Jon to say, “Ahhhh.” (notice she even has her gloves on.)

She really likes to stick the tongue depressors down our mouths (so gross). And when she is done giving all three of us a once over (she even tells us to sit on the exam table) she throws everything away into the bio-hazard bin (yes her hands get disinfected after). Maybe she’ll be a doctor when she grows up?

Regan seems to be is regressing. He has lost 7 oz in less than a month. Which for another child is probably no biggie, but Regan is skin and bone to begin with. For him almost 1/2 a pound may as well be 20.

We went and had a visit with Dr. M on Monday to check out some swollen neck lymph nodes and to see just how much weight he had lost. (I knew he had lost due to clothes fitting baggy.) She recommended that we go ahead and get the scope since the BV is coming back and he is loosing weight again. So we have an appointment with Dr. K tomorrow. Regan has to be seen within 30 days of a procedure for the insurance to be happy. And since he was doing so well it’s been over a month since we last saw Dr. K. He is already on the scheduled for the scope and biopsy. That gets done on Friday.

So this week I will feel like I live at Dr’s offices. It’s a REAL good thing Kaylee LOVES Dr. offices. Oh, and his lymph nodes are swollen, but not worrisome yet. We have a list of things to watch for.

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