Category Archives: regan

Merry Christmas 2010!

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Traaaadition! TRAAAADITION! (Fiddler in your head now?) This is how we do it.

Christmas Eve dinner at the Jamie & Linda Kreyling Home. We eat Navajo Tacos, Scones with Honey butter, and lots of pie and cookies. Games, Caroling, Stories (“Teach the Children”), & FUN!

Sitting with our stockings Christmas morning before heading over to Jamie & Linda’s for our traditional Eggs, Scones and yet more Honey Butter! We NEVER wake up with enough time to open presents before we are due to go eat the delish. So we dig into our stocking then load into cars. We eat breakfast, play a few games, and THEN we head back home to open gifts. Sam HATES this. She would like us up at 5 am to open gifts “like normal families do”. But we are SO not normal!

Kaylee loves going to Jamie & Linda’s. She always has SO MUCH FUN! Jadzia & Cassie spoil her. And she LOVES to play the piano and they have one. So she is pretty much in heaven there.

Kaylee was very pleased with her new apron (Mama made), and her new Barbie princess movie. Speaking of Barbies. She got several (with tons of clothes) hand me down barbies from Aunt Linda. She LOVES her princess’! She even shared the Aladin boy one with Regan. She got quite a lot of goodies this year. And it was the first year she really got into unwrapping everything by herself.

Dinner with ALL the Kreyling’s Christmas day. This was 1 of 4 FULL tables. It was awesome how much family was able to come. We eat at the Manderin Buffet. You know ’cause it’s open, and there is NO cooking/cleaning required of us. SWEET! Jon still thinks it’s just plain wrong to have Chinese for Christmas Dinner. He is happy that next year Christmas falls on a Sunday. Which means we will not be going out to eat. Sabbath Day and all. He wants a ham. No egg rolls please. (although he happily ate lots at the buffet)

And of course my baby browns! He ate peas, and stole multiple forks (see above photo for evidence). Peas were the only thing I deemed as safe for him to eat. They made a lovely mess. 🙂 He got lots of goodies as well. I made him a couple of ties from some of his Papa’s old ones. And he wears them with his Daddies mission tie clip. I forgot to get a photo of the ridiculous amounts of cuteness. I’ll get one this coming Sunday. It’s to die for adorable!

Oh, and I loved all the cards you sent me us this year. They look so lovely on my tree. I’ll scan my favorite card to share. Never mind it’s HERE. It’s pretty AWESOME right?!

We hope everyone had a lovely Family & Christ filled Christmas!



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Droid pictures

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I chose to leave the camera at home and just use Jon’s phone. You know. One less thing to remember at 4:30 AM. Big long post previously posted full of the juicy details. Scroll down if you’d like to read all about it. Other wise enjoy a few pictures of our hospital visit.

Mama and Regan in our waiting room. Doesn’t he look so cute in his tiger gown?

Daddy and Regan watching “The Cat in the Hat knows a lot about that” while we are STILL waiting…….. Took forever. O.K. it just felt like forever, but it was quite the wait.

I had to get a picture of a drugged up Regan smile. This was when his favorite part (The “GO GO GO” song. He sings along.) came on after the nurse came and gave him a sedative. They took him back to the O.R. shortly after.

This is the “art work” that hangs above everyone in the waiting area. I named it Falling Death. Jon, the reception nurse, and fellow waiters all agree. Falling Death is scary even if you are surrounded by nurses, surgeons, and O.R.’s.

Jon took a photo standing right under it. Look at all those death spikes! After we went up stairs to get a different view.

This is the upstairs elevator lobby view. They are hard resin folded V’s hung by fishing line. One has already fallen. We sat on the outskirts of Falling Death and discussed, while eying the clock and the O.R. doors. Falling Death does not make relaxing art work. You should have relaxing art work while waiting in an O.R. waiting area.

I was SO SO SO happy to be holding my Mister Man. We are told he did great during the whole deal.

Our sweet nurse took this one of us. All our nurses and Dr.’s were just awesome. Really helped calm the Mama worries. The Daddy is always calm. He is my rock.

And last but not least. A cruddy picture of his first (sure to be more right?) I.V. bruise. This was the best one we got. He didn’t feel like cooperating much. We tired Saturday, and Sunday to get a decent one.

Thanks to all for the prayers, concern, and well wishes. You guys are the best!


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Answering questions.

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We’ve been asked by LOTS of friends/family what exactly is wrong with Regan. Until now we haven’t had definitive answers. So let’s get on with the process of answering the question.

Thursday was a LONG day of stripping bedding & clothes, baths, diaper changes, and loads of laundry. The Milk of Magnesia CLEANED him OUT. I changed 15 diapers! I haven’t changed that many diapers for Regan in one day in a while. I do not miss it! Never mind the baths and laundry. And it was WAY to cold out to open up the house. Fabreze just didn’t quite help with the smell. (Diapers get taken outside right away, but still the stench would just linger!)

Then we got to wake up at 4:30 AM Friday morning to drive down to St. George for Regan’s Scopes and Biopsies. He had a Colonoscopy and an Upper Endoscopy (EDG), with biopsies taken from both areas. Another LONG day. My Dad met us and took Kaylee off to play with Yaiyai.

The only thing Regan found upsetting about the whole affair was that he couldn’t finger suck when he woke up. They put the I.V. in his finger sucking hand and had it all tapped up. Mister Man did not appreciate that. He has been VERY clingy the last few days. So I am only now getting a chance to do an update.

So we have video and photos of the scopes, but you don’t need to see them. (Jon really wants me to post them.) They are not for everyone. Kind of graphic and gross. But we did get some good information from the scopes. Regan has Colonic lymphoid nodular hyperplasia (LNH). He may also have some mild acid reflux. We get the biopsy results from both scopes on Wednesday. Then we will know if there is anything else going on.

LNH means his body doesn’t react to food allergens until it’s into his large intestine and colon. So once food gets down there his colonic lymph nodes get all inflamed (kind of like hives) and his body cannot digest food and absorb calories and nutrients. It’s a “delayed-type food hypersensitivity”.

Which for Regan results in chunky Butt Vomit (diarrhea), weight loss, malnutrition, anemia……….. Dr. K said it was sort of like anaphylactic shock, but just in a different location. So he won’t suffocate and die immediately like someone with a severe peanut allergy, he will just slowly wither away from starvation. (Fabulous. Right?!)

SO our newest game plan is to do a round of steroids to reboot his system. I guess since his body has been in overdrive for so long it’s just overreacting to EVERYTHING now. We will also be getting a more extensive allergy panel done. The super fun skin prick test to find out what else besides wheat and dairy we need to cut from his diet. Because it’s clear that there IS something that the first test (blood draw) missed.

Jon is working on getting me the pictures. I’ll post those ASAP. The cute ones. Not the gross ones. 🙂

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