Category Archives: reflux

One year post surgery follow up

She made it an entire year with only ONE UTI! I was fairly confidant that surgery was successful. Ultrasound and Dr. R confirmed. 🙂
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Ultrasound is done first so Dr. R can take a look at her innards. She’s really great at getting ultrasounds taken.DSC00681 DSC00682 DSC00684

And that’s a wrap on ultrasounds until next year! DSC00687

And now we wait for our appt with Dr. R.DSC00688

Basic vitals taken by her awesome nurse.DSC00696

And then I was wrangling with Monkey girl so Regan got some great selfies. DSC00710And a quick pic with Dr. R before saying “see ya next year!”

Cherry on this trip to the Children’s Hospital was the texts saying Babies Logan and Connor were born and everyone was good. What a great day.

Kaylee’s hospital stay day 2

So I didn't take many pictures of today as it was SO boring. RN Craig came in at 6 am to remove her cath. She declared Craig her favorite person. Then our day got interesting. Every 20 – 30 min we would unplug her pulse/oxygen monitor and her IV and carry her to the toilet. It was a day full of potty trips. She didn't want to eat or drink anything so they were pumping her full of fluids to keep her hydrated. Today's goals were pain management, using the toilet, and eating solids.

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I asked Kaylee how she was feeling after Craig finished up and her cath was gone. She was so happy she had now words. I got a sleepy drugged up smile and two thumbs up.

 

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Most of the day she spent watching movie after movie. And sleeping. LOTS of sleeping.

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Her awesome teacher came by to check on her and bring her some fun work. Kaylee was lightly sleeping when she arrived so I rubbed her arm and she opened her eyes and said, "Oh, hi Mrs. Bringhurst. I had surgery."  Kaylee was SO happy to see her. Mrs. B also brought Kaylee a lamb to snuggle with. We love Mrs. B so much. She is a wonderful teacher/person.

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The staff brought Kaylee books, puzzles, coloring pages, a doll house, and games. She was only kinda interested in those things. BUT after her visit with Mrs. B  she wanted to pull out the crayons and do some brain work.

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Kaylee wanted to bring many more of her stuffed animals with us. I told her she could pick two knowing she would get a new one from the staff when we checked in. So she brought Twilight and Pups from home. Then she chose her new bird "cotton candy" (named for having hair that looks like cotton candy) and Mrs. B brought her "Bow" (named for his bow tie). I really to love how easy her animals are to keep straight.

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We ordered Kaylee some chicken broth after she delared that jello was NOT for her. It sat in our room until Jon brought in real food for us to eat. Then she announced that her belly was FINALLY hungry for her soup. She siad it was delish. After keeping the broth down we got to give her saltines and a cheese stick. This was exciting because her keeping down solids was one of our requirements pre discharge. She didn't eat a ton in the hospital, but she ate and drank just enough that her Ritchy gave us the green light to go home. She also was having awesome urine output and off the morphine.

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Best face EVER when she was told that this was her last round of vitals. She was beyond thrilled that she was going home. Us too!

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This was her second favorite part of her day. IV removal. WOOHOO!

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Round two on the happy thumbs up.

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Admiring her free foot.

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Saying WOW because she was ready to walk out of there and just SUPER happy.

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She insisted on walking out to the the car. She was very happy to be moving under her own power after two days.

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IMG_1030She made it from the 8th floor to the parking garage before asking to be carried. It was not a short walk. We were all so happy to be heading to get our little buddy and go home.

Kaylee’s hospital stay day 1

We woke up at 4:30 am. Which is bad enough with out the drunken wrong number at 2:30 am. Ya. That sucked. I had a minor heart attack thinking the alarm didn't go off and the hospital was calling to see where we were. Nope. Just a drunky. I really wanted to call him back at 10 am and return the favor. Sleep is over rated right?

 

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Meanwhile Kaylee was super alert and perky as we were getting admitted.

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So today Kaylee had her kidney to bladder reflux repaired. It took just over two hours. They had a social worker come in to explain what was going to happen. Kaylee impressed the hospital staff with her knowledge of what was going to happen and got lots of "you're so smart", "you're so adorable", "you're so brave". The social worker left not having to explain anything and smiling. Her urologist and the anesthesiologist were both pleased with how well she did in surgery.

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The first round of vitals are always exciting.

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All gowned up and ready to wait. And wait. And wait.

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To the play room!

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Pre surgery chat with Dr. Ritchy. Kaylee always has really good questions for him. She calls him "My Ritchy"

Kaylee: So if this doesn't work what do we do?

Dr.: It will work. I've done this before.

Kaylee: Oh, okay.

 

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While she slept we did TONS of writting and knocked out most of our Foster to Adopt paperwork.

 

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Helloooo hand crap. Nice to feel you again. It has not been nearly long enough since you last visited.

 

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Kaylee and Jon when she was finally coherent post surgery, She came out from under so calmly this time around. It was a nice surprise.

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My girl and me post surgery.

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Jon showing our first nurse how to trouble shoot the TV.

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She got lots of oohs and ahhs over her soft Angie blanket. She couldn't spend the night in the hospital without it.

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We lucked out and got a corner room. BIGGEST hospital room I have ever been in. It was honestly bigger than our master.

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Poor kid scared me silly. She reacted poorly to something (they think it was her IV antibiotics). This happened about the same time that her epidural wore off and she could feel EVERYTHING. She was in pain (not due for her IV Motrin yet) and itchy. We had two nurses, a doctor, and two interns hovering around her deciding how bad her reaction was and what would be best to use to treat her. Jon thinks she just got herself worked up from finally being able to feel the cath and wanting to pee, but having painful bladder spasms. But she was trying to crawl out of her skin, and didn't want anyone to touch her. She does get flush when she gets worked up or over heated, but her face and around her eyes got puffy and that made us all worry.

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They decided to push Morphine and Benedryl. About and hour later she was looking normal and passed out. She passed out kinda suddenly and that freaked Jon out. But she woke up enough to let us know she was just sleeping.

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She ended her night with a visit from Emily and Josh. She got to facetime with Becca. Those two had a funny conversation.

Becca: I am at home on spring break.

Kaylee: I am in the hospital and board.

Plus Becca was full of really funny jokes.

Jon and Kaylee let me sleep. I ear plugged up and Jon took the night shift. Kaylee was up a couple of time during the night, but not too too bad for post surgery and in the hospital.