Kaylee had a SUPER early morning. And she is NOT an early morning person. We left the house just after 6 am and headed to the Children's hospital for her VCUG imaging test.
I had the gal who checked us in at imaging snap a quick photo of us. I let Kaylee put lipstick on last night. it stained her face. She had pink smeer all day.
They hand out coloring pages and crayons to the children to keep them entertained while they wait.
The nurse and social worker (child advocate) were dying over her little photo shoot. They said it was the best thing ever watching her strike her poses and giggle over the breeze on her backside.
She did amazing. She only yelled "OUCH" when they put in the catheter (expected and understandable), but otherwise was happy to chat away and play on the ipad. Kaylee actually used the bed pan this time so they were able to get good imaging. It looks as though the duflux procedure didn't take at all. Frustrating.
Her comfort toy for this visit was her new Twilight Sparkle. She told her advocate ALL about My Little Pony. The advocates give the children a toy after procedures/test/imaging and she found Kaylee a new Twilight Sparkle. Kaylee was VERY pleased.
Two hours later we were done. And we were both tired all day from our abnormally early morning. We meet with her urologist next Friday. Hopefully he will have something new to share with us.
